Unraveling the Mystery: What is the Main Cause of Lipedema?

Rosa M Saidel LMT CDT-c MLD-c • November 17, 2023

Lipedema, a chronic condition characterized by an abnormal accumulation of fat and other tissues under the skin, has been a subject of medical research for decades. Despite this, the exact cause of lipedema isn't known. This lack of understanding has contributed to a low level of lipedema awareness among both medical professionals and the general public. This article aims to shed light on what is lipedema, its symptoms, stages, and why it's not the same as lymphedema.

Understanding Lipedema

Lipedema is a disorder that primarily affects women and is often mistaken for obesity or lymphedema due to its similar appearance. However, it's crucial to understand that these conditions are distinct from each other. Lipedema involves an irregular distribution of fat cells in the legs and sometimes arms, leading to a disproportionate body shape. Unlike typical weight gain, dieting or exercise does not significantly reduce the fat deposits associated with lipedema.

Lipedema Symptoms

The symptoms of lipedema vary depending on its stage but generally include pain or tenderness in affected areas, easy bruising, swelling (especially towards the end of the day or after physical activity), and issues with mobility due to enlarged limbs. As lipedema progresses through its stages, these symptoms can become more severe and debilitating.

Stages of Lipedema

There are generally stages of lipedema:


1. Stage 1: The skin appears smooth but feels thick or spongy due to increased fat cells.

2. Stage 2: The skin starts to feel uneven or bumpy due to further increase in fat cells.

3. Stage 3: Large deposits of fat can be seen hanging in folds over areas like knees or ankles.

4 Stage 4: (also known as lipo-lymphedema): This stage involves complications from untreated lipedema leading to secondary lymphedema.

Why is Lipedema Not The Same as Lymphedema?


While both conditions involve swelling, they are caused by different underlying issues. Lymphedema is a result of damage to the lymphatic system, leading to a buildup of lymph fluid in the body's tissues. On the other hand, lipedema is characterized by an abnormal accumulation of fat and other tissues under the skin. The two conditions can coexist in a condition known as lipo-lymphedema.

What is the Cause of Lipedema?

The exact cause of lipedema isn't known. However, several theories suggest that it may be linked to hormonal imbalances or genetic predisposition. The fact that lipedema primarily affects women and often starts or worsens during periods of hormonal change (like puberty, pregnancy, or menopause) supports the hormonal theory.

Lipedema and Obesity

While lipedema is not caused by obesity, these two conditions often coexist. This overlap can make diagnosis difficult and lead to misdiagnosis. However, distinguishing between them is crucial as weight loss strategies effective for obesity may not work for lipedema.

Life After Lipedema Diagnosis

Being diagnosed with lipedema can be overwhelming due to its chronic nature and potential impact on quality of life. However, early diagnosis and management can help control symptoms and slow progression. Treatment options include compression therapy, manual lymphatic drainage, low-impact exercises, and in some cases, surgery.

Conclusion

Despite ongoing research efforts, much about lipedema remains unknown including its exact cause. This lack of understanding contributes to low levels of lipedema awareness among both medical professionals and the general public - a gap that needs to be filled urgently. Raising awareness about what is lipedema - its symptoms, stages, differences from other conditions like obesity or lymphedemia - is crucial for early diagnosis and effective management.

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By Rosa M Saidel LMT CDT-c MLD-c • December 4, 2023
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