What Happens If Lipedema Is Left Untreated?

Rosa M Saidel LMT CDT-c MLD-c • November 17, 2023

Lipedema, a chronic disease of lipid metabolism, is a condition that primarily affects women and is often misunderstood or misdiagnosed. Despite being relatively common, lipedema awareness is still low. This lack of knowledge can lead to delayed diagnosis and treatment, which can have severe consequences for the patient's long-term prognosis. This article aims to shed light on what lipedema is, its symptoms, stages, and the potential risks if left untreated.

What Is Lipedema?

Lipedema is a chronic disease of lipid metabolism that results in an abnormal accumulation of fat cells in the legs and sometimes arms. It typically starts at the hips and ends at the ankles. Unlike regular obesity or lymphedema, this fat cannot be lost through diet or exercise alone. The condition often leads to pain, swelling, easy bruising, and mobility issues.

Understanding Lipedema Symptoms

The symptoms of lipedema vary depending on the stage of the disease but generally include disproportionate fat distribution starting at the hips and ending at the ankles. The affected areas may feel tender or painful to touch and bruise easily. Other symptoms include feelings of heaviness in the legs, decreased mobility due to enlarged legs or arms, joint pain especially in knees and ankles, fatigue especially after physical activity.

Stages of Lipedema

There are four stages of lipedema:


1) Stage 1: The skin appears normal but feels spongy.

2) Stage 2: The skin becomes uneven due to increased fatty deposits.

3) Stage 3: Large extrusions of fat develop causing significant deformity.

4) Stage 4 (also known as lipo-lymphedema): This stage involves complications from untreated lipedema leading to secondary lymphedema.


A key diagnostic tool for identifying lipedema is the negative Stemmer sign, a clinical test that involves pinching the skin on the upper part of the second toe or finger. A positive Stemmer sign is indicative of lymphedema, while a negative one suggests lipedema.

The Risks Of Leaving Lipedema Untreated

If lipedema is left untreated, it can lead to complications that are detrimental to both physical and mental health. The constant pain and discomfort can significantly impact quality of life, leading to depression and anxiety. Physically, the excessive weight can cause joint problems and mobility issues. In severe cases, untreated lipedema can progress to lipo-lymphedema, a life-threatening condition where the lymphatic system becomes impaired.

Treatment Options For Lipedema

Early diagnosis and active treatment for lipedema are required to manage symptoms and prevent progression. Complex decongestive therapy (CDT) is one of the primary treatments for lipedema. It involves manual lymphatic drainage (MLD), compression therapy, exercise, and skin care.


Manual lymphatic drainage is a type of gentle massage that encourages the movement of lymph fluids around the body. This helps reduce swelling and improve circulation in affected areas.


However, it's important to note that while these treatments can manage symptoms, they cannot cure lipedema. Therefore, raising awareness about this condition is crucial for early detection and management.

Conclusion

Lipedema is more than just a cosmetic concern; it's a chronic disease that requires ongoing management to prevent serious complications. If left untreated, it can lead to severe physical discomfort and emotional distress. Early diagnosis and treatment can determine the patient's long-term prognosis significantly.


Therefore, if you or someone you know has symptoms suggestive of lipedema such as disproportionate fat distribution starting at the hips and ending at the ankles or easy bruising in these areas – seek medical advice promptly. Remember: awareness is key in managing this condition effectively.

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